EDS Awareness Month

When you hear hoofbeats, think of horses not zebras
— Dr. Theodore Woodward’s advice in making a diagnosis.
Sometimes when you hear hoofbeats, it really is a zebra. — Ehler’s Danlos Society

May is Ehlers Danlos Syndrome awareness month. While EDS is becoming better known, it is still a rare disease and a lot of people haven’t ever heard of it. And unfortunately, it is not something that a lot of doctors recognize, often believing that the symptoms are imagined, unrelated to each other, or the person is just clumsy.

But EDS can be a debilitating disease, and victims with the vascular subtype in particular susceptible to early death due to aortic tears organ rupture.

What is EDS?

Ehlers Danlos Syndrome is a connective tissue disorder resulting in hypermobile joints, and stretchy or fragile skin.

About my EDS book

One of my friends from school has EDS. Even though she was diagnosed with hypermobile joints in junior high and went through a number of joint collapses causing broken bones, she was not diagnosed until adulthood, when her two sons were diagnosed with EDS.

I wanted to help with spreading awareness about EDS. As I researched EDS, it occurred to me that it would make a good disease to base one of my medical kidnap books around. A child with frequent dislocations and broken bones, deep bruises, and terrible scarring could easily be mistaken for one suffering from domestic abuse. So, I started work on EDS, book #2 of the Medical Kidnap Files.

Teaser

With a long string of unbelievable stories to explain her frequent injuries, Social Services sees Katt is the stereotypical abused child. When she is admitted to hospital with yet another broken bone, they do the only logical thing to protect her, removing Katt from her mother’s custody.

But Katt and her mother know that something is wrong, and it has nothing to do with abuse, and the longer Katt stays in foster care, the worse her health gets. Can they get the answers they need before it is too late? Can they get the answers and get Katt back home?

Read sampleKindle
$0.99 for the month of May

EDS and medical kidnap in the news

And just in case you think it could never happen…

Medical Kidnapping in Maine: Child with Ehlers-Danlos Syndrome & Sister Seized

“There’s about 10 to 15 percent of the EDS population that’s been adopted. Most of them tell me I was adopted because I was supposedly abused. Now, when I sit back and look at it I think was that parent really abusing that child? I don’t think so,” said Wilson.

medicalkidnap.com

Spread the word!

Spread awareness of EDS on your social networks and let them know about my $0.99 deal.

Tell me what you think!

More from my site


Featured Book(s)

Gem, Himself, Alone

Gem, Himself, Alone

Alone on the street, Gem joins up with the Rippers gang to escape his old life, burying his past the best he can.

Riker, a vice cop, makes it his business to put Gem behind bars, but he can’t break the alibis Gem has for crimes Riker knows he has committed.

Gem has a special gift for unbreakable alibis.


Find out more
Vegan Baked Alaska

Vegan Baked Alaska

Mary Lou couldn’t have been more wrong. Of course Erin Price, gluten-free baker extraordinaire, would stumble over a body on the cruise she had won as the runner-up winner in the baking category at the Fall Fair. The trouble is, no one will believe her.
Find out more

Featured Posts

Upcoming Events

Thriller Extravaganza
12:00 am
Love medical thrillers? A select group of 17 Wall Street Journal, USA Today, bestselling, award-winning authors has joined forces to bring you 17 full-length novels In one boxed set that will keep you at the[...]
When Words Collide @ Delta Calgary South
Aug 9 – Aug 11 all-day
When Words Collide @ Delta Calgary South
12:00 am
It’s that time of year again! Join writers from Alberta and beyond in Calgary for a fun and educational conference. Here are the panels I am scheduled to participate in: Saturday 1 PM – Bonavista[...]
Release of June, Into the Light
12:00 am
Incarcerated after a failed attempt at armed robbery, June Simpson is forced to detox and to face the reality of the misery and abuse she has perpetrated on those closest to her, especially her children.[...]