EDS Awareness Month

When you hear hoofbeats, think of horses not zebras
— Dr. Theodore Woodward’s advice in making a diagnosis.
Sometimes when you hear hoofbeats, it really is a zebra. — Ehler’s Danlos Society

May is Ehlers Danlos Syndrome awareness month. While EDS is becoming better known, it is still a rare disease and a lot of people haven’t ever heard of it. And unfortunately, it is not something that a lot of doctors recognize, often believing that the symptoms are imagined, unrelated to each other, or the person is just clumsy.

But EDS can be a debilitating disease, and victims with the vascular subtype in particular susceptible to early death due to aortic tears organ rupture.

What is EDS?

Ehlers Danlos Syndrome is a connective tissue disorder resulting in hypermobile joints, and stretchy or fragile skin.

About my EDS book

One of my friends from school has EDS. Even though she was diagnosed with hypermobile joints in junior high and went through a number of joint collapses causing broken bones, she was not diagnosed until adulthood, when her two sons were diagnosed with EDS.

I wanted to help with spreading awareness about EDS. As I researched EDS, it occurred to me that it would make a good disease to base one of my medical kidnap books around. A child with frequent dislocations and broken bones, deep bruises, and terrible scarring could easily be mistaken for one suffering from domestic abuse. So, I started work on EDS, book #2 of the Medical Kidnap Files.

Teaser

With a long string of unbelievable stories to explain her frequent injuries, Social Services sees Katt is the stereotypical abused child. When she is admitted to hospital with yet another broken bone, they do the only logical thing to protect her, removing Katt from her mother’s custody.

But Katt and her mother know that something is wrong, and it has nothing to do with abuse, and the longer Katt stays in foster care, the worse her health gets. Can they get the answers they need before it is too late? Can they get the answers and get Katt back home?

Read sample Kindle
$0.99 for the month of May

EDS and medical kidnap in the news

And just in case you think it could never happen…

Medical Kidnapping in Maine: Child with Ehlers-Danlos Syndrome & Sister Seized

“There’s about 10 to 15 percent of the EDS population that’s been adopted. Most of them tell me I was adopted because I was supposedly abused. Now, when I sit back and look at it I think was that parent really abusing that child? I don’t think so,” said Wilson.

medicalkidnap.com

Spread the word!

Spread awareness of EDS on your social networks and let them know about my $0.99 deal.

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